Category Archives: Welcome To Autismland: Population YOU!

Waiting for the Other Balloon to Pop…

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Today I had an experience that summed up 2023 for me…it involved my son and the quest for an imaginary balloon. Please accept this story in lieu of a holiday letter that I haven’t written or sent yet. 

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My son wanted this for Christmas:

EXHIBIT A:

For a long time, it was unavailable on the Walmart.com website. Then, finally, I saw there was a link to order said balloon–about two weeks before Christmas. I gladly paid over $11.00 for the dumb thing and, when the package arrived, I stored it in the closet where all things are locked safely away from my kid. (It’s like the Room of Requirements at Hogwarts, only much smaller and I have to stock it.)

The Day before Christmas came along (which to most people means December 24th but because I suffer from a failure to look at a calendar turned out to be December 23rd this year, sigh) and I opened the delivery package to discover I had been sent this balloon instead:

EXHIBIT B:

BALLOON TRAGEDY OF MEGA PROPORTIONS

It’s still a Poppy Trolls Themed Balloon, so no big problem, right?

!!WRONG!!

He wants the round one. He is autistic. He just wants the head of the troll doll, not the entire inflatable corpse! These things matter, people!

So, I immediately went to the email confirming receipt of my product to file an angry, pre-Christmas rant about how the evil Walmart goons had ruined my child’s Christmas. (It hadn’t, but it did panic me about what I was going to give him despite having all the other things he wanted. Mostly.)

I held onto the wrong balloon and waited for the reply. The Walmart-affiliated distributor apologized and gave us a full refund within 24-hours. They even said we could keep the balloon. Alexei was perfectly happy when he got it on the actual Christmas Day celebration on the 25th–which was only one of two presents he got that day because of my calendar-math related issue mentioned earlier.

Fast forward to today: Alexei got a Walmart gift card from Grandma Mary for Christmas. He has been a good boy and he’s been asking for an “Emoji Balloon” repeatedly the last couple of days. He’d seen the picture on the Walmart website. [I bet you are sensing what happens next.]

EXHIBIT C:

I decided it was an easy way to make him happy. We drive to the store and…no such balloon exists. They are selling Valentine’s balloons not to mention a Valentine Spaghetti Sauce and Noodle basket–when did that become a romantic gesture?–and it’s still only December!! What the actual H*LL?

The kid buys a stuffed Paw Patrol toy that he immediately wants when he sees it–despite having various versions of the same toy already–because it is dressed in the costume from the most-recent Paw Patrol Mighty Pups’ movie merchandise.

[Sidebar: we watched Mighty Pups last night. My absolute favorite line in the movie comes from a television reporter who is commenting on the franchise toys marketing the upgraded uniforms for the super-powered Paw Patrol team: “To all the parents out there, I’m sorry.” ]

Most parents would give up at this point. Not me. [Insert cackle of madness here.] We drive to our local Party City store.

There is an entire wall of balloons available, but, alas, no Emoji Balloon. There is also a line of customers getting balloons. Apparently people want to celebrate the New Year in style?

I get the clerk’s attention as she fills and ties balloons.

Me: “Hey, do you have any emoji balloons?”

Clerk #1: “No. I’m sorry. You know, a lot of people ask for them. We really should carry them! I’m sorry we don’t have them.”

I look up at the hundreds of options of mylar balloons overhead and try to convince the kid to pick something else.

Me: [encouraging flexibility] “Hey, would you like a Trolls balloon instead?”

Kid: [inflexibly]”Emoji balloon.”

The clerk is listening and when asked, pulls out a trolls balloon.

Clerk #1: “We have this one!”

If you can believe it, it’s the same darned balloon I tried to order for Christmas!! [See Exhibit A above.]

Me: “Hooray! We’ll take it!”

This will make the kid happy! The clerk blows it up–even asking what color string she should tie it with. She hands it to me. I hand it to the kid. He responds:

Kid: “Emoji balloon.”

He’s nothing if not consistent.

Clerk #1: “We have yellow balloons if you want one of those!?”

This one is trained very well, I can tell.

I sigh and tell her yes. As she finishes tying it off she makes a brilliant offer:

Clerk #1: “You know, I have a marker. I could draw a smiley face on it, if you like?”

Me: “OMG–yes! Thank you. You are a genius!”

When we are checking out. I mention to the cashier how nice the young lady who helped us was.

Me: “Is there anyway I can tell someone what a good job she’s doing?”

The young lady points to a QR Code that says:

“Highly Satisfied today? Scan below to give us your feedback for $5 off on your purchase.”

I take a picture of it, saying,

Me: “I’ll do my best, but I have a hard time filling these things out.”

Clerk #2: “Oh, I can help you with that.”

Within less than the time it takes to blow up and tie two balloons, she walks me through the process. I even ask for her name and add it to the customer satisfaction survey.

Clerk #2: “There you go. Now you can use the discount!”

She finishes ringing me up and wishes us a Happy New Year. I sincerely hope that Mariana and Delaney at Store 431 get a Happy New Year bonus for their exceptional help.

Because, as it turns out, 2023 wasn’t finished with us yet.

EXHIBIT D:

ALL THAT’S LEFT IS PHOTOGRAPHIC EVIDENCE

When we got home, I stopped to take a picture of my giggling, happy child before opening the door to let him in. Then, I turned, remembering I’d seen there was mail in the box as I was driving up. I let go of the door too soon…and I hear the worst sound:

!!POP!!

One of the balloons did not make it into the house. It got killed on the doorstep. Sigh.

Fortunately, my son enjoys deflating balloons, so he wasn’t as broken up about it as I was.

So if all 2023 does is to deflate your joy by half, I guess, that’s about as good as it gets!

Passive Aggressive Cookies for Open Door Policies.

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I am baking cookies. The smell of freshly ground cardamom is overpowering at first, but then melds with the warmth and smells of baking in the oven.

I am an American and I do not possess a good sense of what a 3 mm thickness looks like, nor do I have a ruler, so I have to open and shut the oven door repeatedly trying to figure how long it will be before my already brown cookies are ‘browned’ at the edges. I guess wrong with the first batch, so after figuring out they need at least 15 minutes, I pop that batch in again until I fear burning the pistachios.

“Pistachios?” You might ask.

“Yes,” I say, “Because of my son.”

“Oh, he likes them then?” You presume.

“No. He doesn’t. These cookies are for me. He doesn’t get any!”

I stand in my kitchen guarding both the baking cookies and my son from accessing my bedroom.

I currently have a most reluctant and unexpected open door policy.

Answering the question: What happens when an unstoppable force meets an immovable object?

I’m am very good at holding onto my mad. This happened yesterday and in response, I took all of his stuffies until the door is fixed. I made him write sentences based on how much the guy estimated it would cost to fix the door jam. (Hint it took about 8 pages of tiny print to write them all.) And today he’s cleaned and vacuumed most of the house and swept half the garage.

He doesn’t get any trips or treats until the door is fixed. Subsequently, I get to listen to a litany of requests to “Fix door.”

He’s even insisting on an exact time of repair.

“10 a.m. tomorrow, fix door.” He is standing next to me as I type this.

This is the parenting paradox. Anything you do to “punish” a child’s misbehavior rebounds on you. He can’t go on trips to Burger King–so I can’t go there either. He isn’t allowed to get the highly desired items from my room, so I have to guard him at all times.

It’s going to be a very annoying end to our summer.

At least I have cookies!

Graduated Expectations

Family, From My Brain to Yours, Parenting Heart Palpitations, Photographic Memories, Self-flagellation, Welcome To Autismland: Population YOU!, , ,

May 24th is the anniversary of my husband’s death, but this year I am in such a manic-panic over getting my son ready to graduate school, I barely remember until afterward. When the hullabaloo dies down, I am emotionally wrung out. I am a moldy, gray dishrag of a human being. But, I am also very relieved it hasn’t gone worse than expected. It did go about as bad as I thought it might, but no worse. And in my son’s world, that is a good outcome.

Continue reading Graduated Expectations →

Scripted Speech and Emotional Hostage Taking

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After getting back from taking my son to his favorite place on Earth–sorry, Disney, it’s not you–I stop him at the door to the house and say,“Mommy wants a kiss for taking you to Millenium Park!”

The grudging peck on the cheek I get is accompanied by a shove to get the door open.

Not entirely feeling the love, I ask my son “Who’s the best mom in the world?”

His reply?

“Thank you!” (As if I just complimented him!!)

Having a non-verbal child means he doubles-down on the incommunicative teenager stereotype big time. Scripted speech, like ‘Please’ and ‘Thank-you’ which he practices repeatedly, usually suffice for daily living. But, every once in a while, a mom wants a little validation.

“Who’s the best mom in the world?” I repeat as I unlock the door. And then I answer my own question, “Mommy is!”

My son ignores me, brushes past and demands “Laundry” so we can wash his toy Lightning McQueen stuffies and blanket.

Sigh. Ignored again.

It’s just another day in autism paradise.

Autism in the Trenches

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AUTISM IN THE TRENCHES
BY KIRI L. K. SALAZAR

There is a foe, I cannot see
Wired with hair-trigger senses.
Conflict borne in infancy
     Camouflaged in normalcy
My heart is sore, my soul fatigued
Fighting Autism in the trenches.

My Janus child walks a line between his world and mine
I cannot cross his no-man’s land, the battle never ceases.
Nor can he find his way to me
Along a treacherous path 
Where every wrong step may carve him to pieces.

Some days, the screaming never seems to end.
Severed nerves send SOSes.
Signals get crossed, get lost in transmission
It might be joy, but why take chances?

The silence is worse.
Laying traps of false expectation.
A minefield of hope and regret
With a route that daily changes.

I have waged war against tics and compulsions
Aiming for inclusion.
Making I.E.Ps into I.E.D.s
Is not an error in transcription
But a battle plan with no excuses.

I am tired of this war.
I am raw.  I am defeated.
I have forgotten, 
Who am I really fighting for?
If the one I love is the one who is bleeding?
I cannot fight it any more.

In the Land of Normal, Autism is the enemy.
There are no victors and no survivors.
Unless I surrender completely to the pain of what is
and make peace with what will never be.

Instead of making war on his differences,
I will raise the white flag
And embrace those moments of calm.
For, if all I know is war, how can I ever come home?

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The artwork entitled Autism in the Trenches which is based on the above poem was installed for public consumption at ArtPrize 2021. It has now come home and awaits installation on the only wall big enough to support it.

Search for Lot 90-70454

For more details go to this link: https://www.artprize.org/70454

Doing a Thing…

Art, Challenge Accepted, Crisis DuJour, Heartbreak, Parenting Heart Palpitations, Terrifying Transitions, Welcome To Autismland: Population YOU!

In case anyone wonders, I am doing a THING.

I can neither describe it nor defend it, but I’m definitely doing it because I plunked down a $25 no-refund application fee and I will spend an insane amount of money before I admit I am ill-qualified to do the THING.

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Continue reading Doing a Thing… →

Happiness in a Box

Challenge Accepted, Family, Family Ties, Friends, Welcome To Autismland: Population YOU!,

I was given a quest this week to buy crayons. No problem, right? As my favorite character from The Big Bang Theory might have put it: “Easy-peasy, oh so breezy.”

This simple task turned out to be a lot more difficult than expected.

***

Continue reading Happiness in a Box →

When the Pumpkin Hits the Fan…

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<<<STRESS>>>

Everybody has it. It’s the energy that fuels life. If you don’t have enough stress, you probably would have been eaten by something furry back in prehistoric times to keep you from reproducing your laid-back DNA. Stress kept you on your toes back then.

Nowadays, however, it tends to be a corrosive that eats away at your central nervous system unless you learn to deal with it in someway. Today was a test of my emergency stress management responses. You may have handled things differently–probably averting the same crises with ease. But, I defy you to read the following and not at least have a little sympathy for a mom who just wanted to read a book.

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Continue reading When the Pumpkin Hits the Fan… →

A Boy, A Book, and the Gulf Between Them

Family, From My Brain to Yours, Heartbreak, Isolation Recreation, Reading-The-Eighth-Deadly-Sin, Welcome To Autismland: Population YOU!, , , ,

Forgive me, this is a hard post to write and I’d like to do justice to both the joys and the sorrows in their turn. It is a post about discoveries and magical thinking–the good and the bad involved in both. This is about a book–and a boy who will probably never read it. I would separate them, but the two things are inextricably linked for me. It would be like dividing the sun from the moon.

Be warned, as it is written on ancient maps past the edge of the known world: Here be dragons!

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Continue reading A Boy, A Book, and the Gulf Between Them →

Out-of-Focus Musings of a Disturbed Mind

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Head Rush

I was complimented recently on my writing, it came via someone with a tenuous Facebook connection. It’s the first time anyone who wasn’t a friend or blood relative (and therefore obligated to like my writing or at least lie to me and say they do) told me they found my writing funny. (But funny in a good way.)

It made me feel, just for a nano-second, what it must be like when famous people get recognized. It was awesome and I thanked him…and then felt like a total fraud because I haven’t given two thoughts to my blog in months!

You can thank/blame him for this post.

Continue reading Out-of-Focus Musings of a Disturbed Mind →