We had another…incident. That’s how it feels, reporting these moments of autism-inspired flare-ups—like filing a police report. You can almost see the mirrored sunglasses glinting as the fictional officer approaches…
IO (imaginary officer): “What seems to be the trouble here?”
ME (me): “I…I…He…and then…”
IO: “Slow down, ma’am. Is anybody hurt?”
ME: (snuffles) “No. Well, just a little.” (rubs hand) “It’s nothing. I’m just crying.”
IO: (looks around) “By the side of the road?”
ME: (wails open-mouthed) “Yessss.”
IO: “Tell me what happened, ma’am.”
ME: (wipes snot) “I tried to take my son to the restaurant.”
IO: (gestures) “This one?”
IO: “And then what happened.”
ME: “Little Man refused to go in…but I made him. And then…” (tears well up again.)
ME: “He lost it. He started screaming and biting himself and fighting me. I tried to stop him. A woman helped me get him to a table and I tried to give him his emergency medicine. While I was getting the pills, he sank his teeth in and I dropped them all over the floor. I was wrestling him, trying to get him calm and he finally started to settle down when…” (starts crying again)
IO: “Go on.”
ME: “…the manager asked us to leave.”
IO: “I see.” (clicks pen, scribbles a few notes) “Was anyone else hurt?”
ME: “No…just my hand. I’m gonna be fine. Just need a Bandaid.”
IO: “Are you going to be okay to drive?”
ME: “In a minute. I’m just waiting until I’m sure Little Man is okay.”
IO: “Sounds like a plan. Take all the time you need.”
ME: (sniffs) “Thanks.”
IO: “Don’t mention it, ma’am. Just get home safe…and take care of that bite.”
With the click of a pen, the imaginary officer walks back to the car and calls it in, then fades away and is gone. I’m left, wondering why days like these are happening more and more often? After forty minutes, we move back onto the highway and get stuck in molasses for what seems like hours in the Memorial Day weekend traffic. My hand stings the whole drive home.
I was tempted to post a video to Facebook. You know the kind. Angry, outraged mother, slams establishment that doesn’t understand her child.* Everyone shares and declares the company the Spawn of Satan. But really, I didn’t blame the management of the restaurant, which I won’t name, but will say, what hurt the most today was not the bite. It was being asked to leave.
In the softest voice imaginable, a young man approached our table where I was standing holding my son in a head lock/hug, and said, “I don’t want to have to ask…you know that.”
He didn’t say the words. He didn’t have to. My son was being more than disruptive, he was having a stellar autism meltdown of galactic proportions. I was just trying to get him calm enough to take him out without an incident and, in a whisper, I told him that.
“How can I help?” He said.
Getting my son to the car was a small trial, but after a Vesuvius explosion of vented rage and frustration, we sat in the car. He fumed. I wept.
People came. People went.
As the meds I’d managed to stuff into my child finally worked, I contrasted this afternoon with the successful-ish visit to school earlier in the day. It was field day and all four of the students in my son’s class participated, or not, as they could. No game went as it was intended—though, the rolling tires up an incline only to chase them back down causing everyone to scatter like ten pins came pretty close. It was a physical metaphor of the emotional rollercoaster of autism parenting. What goes up will definitely come down. Probably with teeth marks embedded in it.
This is the refrain of my life. For every good moment where I manage a picnic lunch in the grass with my son and pictures are captured as proof, there is a corresponding, undocumented, black-hearted despair waiting in the wings to walk to center stage and take a giant, steamy dump.** Guess which memories last the longest?
I have reserved a small, smug nugget in my heart for the moms who struggle with their broad spectrum children. My son has had his moments, but I’ve been able to take him places and do things other families just didn’t. This makes you cocky. You want to think that you have the secret! You know something those other families don’t!
“Just push your child. Find his boundaries and respect them, but keep trying to push them.” I would think to myself.
The boundaries are now pushing back. And, at thirteen, they have the weight of an almost adult behind them. A proto-man who has his own mind and directions and preferences that I am now required to respect. Either that, or be prepared to count my fingers and come up with an odd number.***
I didn’t videotape the experience. I didn’t post it to Facebook. But for a bitter, self-indulgent, desperately tired moment I wanted to. I wanted the pity of nations and the poor-me sympathy of automatic outrage served up on a platter for autism families everywhere. It would feel so good, so soothing to be told I was right. That they were wrong. That people should be more understanding.
!!!VINDICATION IS MINE!!!
But knowing I was the one who pushed my child through the doors when he’d already said, “No!” I knew who to blame.
Being told to leave hurts. Every time. It hurts so very deep, in a place you can’t see and don’t want anyone to know is there. And every injury scars deeper than the last. Keloid patches leather your soul, making the effort to try again that much harder. It’s the smallest cuts that hurt the most; and a life with autism is death by a thousand cuts. With lemon juice squirted in for good measure. And a dash of salt.
So, while the rest of the world expands its horizons this weekend, I am weathering the storm at home, licking my wounds and trying not to be pitiful. Much.
Hopefully by next Friday, I’ll be ready to meet my childhood alter ego on the silver screen. I’ll have my silver arm bands ready and my lasso of truth set for introspection and self-revelation. And forgiveness. And I’ll be Wonder Woman once more.
Asterisk Bedazzled Footnotes:
*Internet Rage Fest–It’s the modern-day equivalent of Andy Warhol’s 15 minutes of fame except that it lasts forever and is shared until it reaches obscure corners of Outer Mongolia and beyond.
**Go ahead, try and scrapbook that image!
***Which my son would no doubt find oddly pleasing. He prefers odd numbers to even. He thinks numbers divisible by two are the devil.