To all the parents who stayed up late wrapping presents, I salute you!
Continue reading From Santa, With Love
To all the parents who stayed up late wrapping presents, I salute you!
May 24th is the anniversary of my husband’s death, but this year I am in such a manic-panic over getting my son ready to graduate school, I barely remember until afterward. When the hullabaloo dies down, I am emotionally wrung out. I am a moldy, gray dishrag of a human being. But, I am also very relieved it hasn’t gone worse than expected. It did go about as bad as I thought it might, but no worse. And in my son’s world, that is a good outcome.
Continue reading Graduated Expectations
After getting back from taking my son to his favorite place on Earth–sorry, Disney, it’s not you–I stop him at the door to the house and say,“Mommy wants a kiss for taking you to Millenium Park!”
The grudging peck on the cheek I get is accompanied by a shove to get the door open.
Not entirely feeling the love, I ask my son “Who’s the best mom in the world?”
His reply?
“Thank you!” (As if I just complimented him!!)
Having a non-verbal child means he doubles-down on the incommunicative teenager stereotype big time. Scripted speech, like ‘Please’ and ‘Thank-you’ which he practices repeatedly, usually suffice for daily living. But, every once in a while, a mom wants a little validation.
“Who’s the best mom in the world?” I repeat as I unlock the door. And then I answer my own question, “Mommy is!”
My son ignores me, brushes past and demands “Laundry” so we can wash his toy Lightning McQueen stuffies and blanket.
Sigh. Ignored again.
It’s just another day in autism paradise.
AUTISM IN THE TRENCHES
BY KIRI L. K. SALAZAR
There is a foe, I cannot see
Wired with hair-trigger senses.
Conflict borne in infancy
Camouflaged in normalcy
My heart is sore, my soul fatigued
Fighting Autism in the trenches.
My Janus child walks a line between his world and mine
I cannot cross his no-man’s land, the battle never ceases.
Nor can he find his way to me
Along a treacherous path
Where every wrong step may carve him to pieces.
Some days, the screaming never seems to end.
Severed nerves send SOSes.
Signals get crossed, get lost in transmission
It might be joy, but why take chances?
The silence is worse.
Laying traps of false expectation.
A minefield of hope and regret
With a route that daily changes.
I have waged war against tics and compulsions
Aiming for inclusion.
Making I.E.Ps into I.E.D.s
Is not an error in transcription
But a battle plan with no excuses.
I am tired of this war.
I am raw. I am defeated.
I have forgotten,
Who am I really fighting for?
If the one I love is the one who is bleeding?
I cannot fight it any more.
In the Land of Normal, Autism is the enemy.
There are no victors and no survivors.
Unless I surrender completely to the pain of what is
and make peace with what will never be.
Instead of making war on his differences,
I will raise the white flag
And embrace those moments of calm.
For, if all I know is war, how can I ever come home?
__________________________________________________________________________
The artwork entitled Autism in the Trenches which is based on the above poem was installed for public consumption at ArtPrize 2021. It has now come home and has been installed on the only wall big enough to support it.
Last night I tried to write a blog post. I was struggling to put into words how I feel about the situation in Minneapolis. The anger that permeates all the news regarding race in our country. The helplessness to change anything.
And then I went upstairs to check on my son and was reminded of WHY you never leave him alone for any reason…





This happened because I told him I was going to cut his hair the next day.
I often wonder whether my son is actually listening to me.
Now I know.
He is listening with a vengeance.
And a plan.
Below is a link on Facebook to my reaction to his styling techniques.
If you are struggling to get through depression or the continuing of Covid-19 isolation, or you could just use a laugh, it is my gift to you.
Also, you won’t be feeling so bad about your own hairstyles now, will you?
https://www.facebook.com/Kirizar/videos/10157361845595868/

In case anyone needs to hear this, you are going to make mistakes as a parent. Some of them will be colossal. Just try not to let that be your standard operating procedure. Learn from my mistakes…
*
Thanksgiving was one of the roughest weeks I have had this year. Technically, it was rougher on the kid than on me. But misery rolls downhill, like Jack and Jill, leaving you with a busted head and an empty pail.
Continue reading When Life Hands You Bitter Melon…I’ve been keeping secrets.
Because I had to.
Because it involved a court case.
That involved my son.
I wrote an anguished post with gut-wrenching pathos at the time it happened.
And I’ve waited until the final hearing to share it.
You may question whether it is appropriate to publish such personal information.
I certainly have.
But, I have decided that if it is at all possible to help another child by sharing what we endured…
…to reach out to other autism families.
…to other police officers.
…to other neighbors.
Then, maybe next time, nothing bad will happen.
Or something better will happen.
Or nothing will happen at all.
And wouldn’t that be beautiful!

June 9, 2018
Dear Officer:
We met today under the worst circumstances. You were just doing your job; I understand that. But I feel I need to explain why I behaved the way I did and, perhaps, you can understand a little bit how the exchange seemed from my side of the handcuffs.
I came to the door, half-clothed and disoriented by lack of sleep, to learn my son had escaped. For fourteen years, I have been responsible for keeping my child safe and I have failed. Again.
But this was different from other times.
The neighbors whose home he entered were sleeping. All they heard was an intruder.
And my son no longer looks like the little boy he is.
When you first approached me, you said something about my son not responding to requests. My reply was not polite.
“Of course he can’t respond. He is a non-verbal autistic!”
You walked away as if you needed space to process that.
So, when you came back and asked me, “Do you realize what might have happened?” I answered you honestly.
“Yes. Yes, I do. It is my greatest fear.”
I was not trying to argue that the situation wasn’t serious. I was just grateful nothing worse had happened. I was focused on making my son feel better, to calm him down right now so he wouldn’t injure himself.
And you wouldn’t let me see him.
You have protocols for interactions. None of the officers would let me approach the car where my son was handcuffed. But I could hear him wailing from where I was standing in my bare feet on a damp sidewalk. You have your emergency response and I have mine.
I have a mother’s need to care for and defend her child. It doesn’t matter that my ‘child’ is five feet eight inches tall and weighs 170 pounds. He is still a child who was crying because you had his blanket, crayons, and papers. Materials now taken away in evidence.
It is probably not expected for officers to feel empathy for the wrong-doer, or his mother. To care about both sides of an equation. Perhaps you were running on adrenaline?
Did you train your firearm on my special need child? He couldn’t follow a simple command like, “Put your hands in the air and get on your knees.”
This thought haunts me.
I later learn, from the reports, that you had to tackle my child to get the cuffs on him. That he resisted and clung to a door frame as he was pulled from the house. This explained the bruises and abrasions.
Trust me, I can picture what might have happened in painful clarity.
In the past, when my son has escaped and entered homes or the nearby church, people have recognized his special needs and things have been okay. Maybe that made me blind to a growing problem.
The fact that my son was wearing a pair of Christmassy pajama bottoms and a Victory Day t-shirt from the school’s special needs programming wasn’t enough to tell you how very special he is.
The training that kicks in and locks an officer into a rigid response doesn’t allow you to recognize my shock and relief at a nightmare that wasn’t fully realized. Perhaps that looked like an insult to you? It wasn’t meant to be.
You couldn’t know that I had been sick with Salmonella. That Friday night was the first night I got any real sleep in almost a week. So, when my son woke at five a.m. Saturday, I was disoriented and put him back to bed. That when he woke me at 6:10 a.m., I was more so. That I fell back asleep is my fault. I promise you, I’m wide awake now.
I am haunted by what might have happened. I am haunted by it every time he is out of sight. I am haunted by a future I cannot see or control but can only dread. Fear never leaves me.
I am grateful that he wasn’t taken into a police station and booked. Thank you for releasing my son into my custody. Even if, like Cinderella, you sent him home with only one shoe.
I had hoped that the neighbors would drop the charges against my son for entering their home and scaring them so badly. But their fear was greater than their understanding of autism or the limits of a system that is not built for children like mine.
I do not blame them. Or I try not to. I understand how it must have looked from their side of the road; I just wish they could see the situation from mine.
Just as I hope you can understand. And that you never learn how it feels to watch your baby in handcuffs, crying and just wanting to go home.
*
Like many unpleasant life lessons, this has been a learning experience.
The wheels of justice move glacially slow.
We waited weeks for the notice that my son was being charge with first degree home invasion. Then we had to be assigned an attorney by the court. Then there were appearances and reports to submit. The sheer drag time of getting a competency review dulled the initial sharp stabs of terror to a steady, gnawing anxiety. I cried a lot this summer and into the fall.
During that time, Child Protective Services became involved. I was very grateful for the unexpected kindness of the Children’s Services Specialist who eventually cleared me of charges of neglect.
There were some positives.
The county health organization expedited Alexei’s process for getting ABA assistance as well as Community Living Supports. We are finally getting the help we’ve needed.
Also, I was able to take advantage of a program through Vivint Gives Back to get a reduced rate for a security system that will wake me up if any one of the doors or windows are opened.
And my son’s window now has security bars, because he can get into trouble even faster than an alarm system can wake me. (I stopped jerking awake at the slightest noise after these were installed.)
My son’s psychiatrist agreed to let my son take stronger meds to help keep him asleep.
And this week, my son was declared legally incompetent.
The case was dismissed with prejudice. Which is a good thing. It means he can’t be held responsible for his crimes and the verdict is final.
And I can only hope that the next time a family like mine is struggling, that it doesn’t take a crisis to get assistance. And that maybe the neighbors will offer to help make our lives easier instead of harder.
As for me, I spent these months channeling my fears and anxiety into my garden. Every time I had a panic attack or thought about losing my son, I planted flowers. I think I there are over five hundred bulbs and perennials out there now.
So, when spring arrives, perhaps it will bring a promise of better things.


The neighborhood squirrels had something juicy to gossip about this weekend. I invite you to consider how it went–I imagine it looked something like this:
Bushy-Tailed Theater Presents:
Squirrel One: “Chitter chitter, chitter chit…(hang on, translation matrix is running slowly)…there…she’s at it again. First, she brought the plastic bags filled with yummy goodness to her giant not-a-tree house and then she moves it all back to the smaller not-a-tree house.”
Squirrel Two: “It’s about damned time. I can’t understand why she stored the food in a place so close to where she sleeps! Doesn’t she know that’s the first place other humans will look for food?”
The squirrels watch for a few minutes as the human wheels more and more bags filled with yummy goodness to the smaller not-a-tree house to feed it to the white beast living there.* They watch as she attempts a game of Tetris—trying manically to shove all of the stuff into a place too small to fit it.
Squirrel One: “What is she doing with it now?”
Squirrel Two: “Putting it in the white beast that hums in the smaller not-a-tree house…hmmm, she is terrible at packing nuts. She is doing the human equivalent of a bushy-tailed dance of frustration…what do you suppose ‘sonofabeak’ means anyway? Humans don’t have beaks!”
Squirrel One: “Who knows with humans? She’s obviously got too many nuts. She should get rid of a few.”
Squirrel Two: “Well, you can forget about getting any of the sweet snow. The human boy is eating it straight out of the carton for dinner. We’ll be lucky to get to lick the leftovers when the trash goes out six suns from now.”
Squirrel One: “He can have it. I tried the yellow kind once and it was terrible.”

What the squirrels do not realize is that the human—me—is very shortly going to realize that the not-humming-any-more white beast in the house—the refrigerator—is not actually broken. But I won’t find this out until the next morning. Someone who shall not be named unplugged it in a genius work-around of the “Do not turn the dial in the fridge to off!” rule.

Squirrel One: “Chitter, chitter…screw it…Hey, Frank get over here. She’s back.”
Squirrel Two: “What? I was watching the boy human create a nest. He is really marvelous with his use of scissors on various media. I wish I had opposable thumbs.”
Squirrel One: “Never mind that, I’ve seen that episode before. It ends with the mother human yelling at the boy human, making him clean it up…and then the boy dumps it all out again when her back is turned. No, you want to watch and see what she’s doing now.”
Squirrel Two: “What…hey!…didn’t she just move all that stuff yester-sundown? Why would she move it all back to where she stored it in the first place? Was the smaller not-a-tree house invaded?”
Squirrel One: “Nah. At least, not on my watch. She just wanted to repack it all, I guess. She gave the white, humming beast in the big not-a-tree house a bath. She was very tender and loving toward it. Though, she didn’t lick it or anything. She cut the monster into pieces and washed each section in the small silver lake in the food room.”
Squirrel Two: “Was it some kind of human magic? Was she trying to prevent a curse?”
Squirrel One: “No…but maybe she was trying to inflict one. I heard a lot of cursing going on.”
Squirrel Two: “Who was she trying to hex?”
Squirrel One: “The boy human, I think. She chittered at him on and off all sun-time. Though, I don’t think they speak the same language. He kept indicating he wanted something to eat and she just kept making him help bathe the giant humming beast that’s hogging all the food. She’s only encouraging him to try and kill it again later, from what I can tell.”
Squirrel Two: “Humans are weird.”
Squirrel One: “Like I said, there’s one nut too many in that place.”
__________
Asterisk Bedazzled Squirrely Footnote:
*I don’t care how labored the effort is, I find squirrel speak hilariously funny. Be grateful I limited it to household descriptions.
__________________________________________________________________
Please admire my newly-cleaned beast…er…refrigerator, someone should considering how many hours went into its production:


*
I read an article today by a mom who describes herself saying, “When Did I Become Broken?” As she lists, point-by-point, her mental health challenges, I find myself lifting an imaginary glass saying, “Amen sister!”* After summing up the depressing qualities of life as a single mom with autism flavorings, I am thoroughly gruntled.
But, like the mom above, I too am enjoying the thrills of DBT Therapy. I decide to do a homework assignment and galump outside—grumbling the entire way, thinking “f*ck positivity” and dragging behind me a thick cloud of despair like a cloak of wet cement.
As I practice breathing–inhale, hold breath for a few seconds, breathe out–my eyes close and I felt the sun hit my face like a welcoming benediction. I muscle past the pain of echoed despair and drift toward the nearby farmer’s market.
On the way, I pass the same corner house I always do–the one with the scraggly white fence and a host of plants trying to escape through the wide, chipped painted slats. An enormous maple tree dominates the front corner and I am further distracted from my gloomy funk by the chittering of a familiar friend.

High in a crook of the tree, the squirrel gives me a concerned look–the kind that just invites you to start talking to him.
“Look at you! So brave. So bold. Not bothered by me in the least.”**
The squirrel is all nonchalance, flicking his head up and back down to me as if he has pressing things to do and I’d better cut to the chase.
I’m admiring his calm when the dog in the house intrudes on our conversation:
“Bark bark, barkety bark bark… woofity, woof, woof.”***
No doubt the dog is letting me know I am in imminent danger of doggy justice…just as soon as he figures out how to use the doorknob. I think he also told off the squirrel, but I might just be imagining the eye roll the squirrel gave me.
“You are certainly braver than me.” I tell the squirrel. “I know he’s behind glass and I’m still scared of that dog!”
The squirrel gives me the bush-tailed equivalent of “What Evs” and scampers away.
I make my way to the farmer’s market which is closing up its stalls slowly enough I am able to grab an impulse cabbage and a bag of reasonably priced Honey Crisps. Just before I leave, I snatch up a tiny pumpkin for 75 cents.
Back at the office, I place my orange gourd du season on the desk and realize, I’m feeling better–not fixed 100%–but definitely better. I have to wonder that no one has figured out a way to use squirrels as therapy animals.

So, if you haven’t heard from me in a while, don’t worry. I’m working through some issues. And if anyone asks, I’ll be with the squirrels. Apparently, it’s all the rage:
*All beverages quaffed on this blog will be imaginary unless otherwise designated. They also will come with tiny umbrellas and fruity names like: “Divine Intoxication Infused with Chocolate Dreams.”
**No, I did not say “Squeak….squeak…chitter…squeak.” I do not speak squirrel. What kind of idiot do you take me for?
***Or words to that effect. I don’t speak dog either. But I can recognize “Fuck you and the horse you road in on!” in many languages.
_____________ You Read This Far Bonus_________________
You want to read more about squirrel potential? Great! Look no further than a nomination for president to be found at:
I highly approve the furry-tailed candidate’s promise to make therapy squirrels available to everyone! The no-parole until they graduate stance on children’s education might be a mite rigid. But, his nutty stand on gun control will at least make you smile.
Words, images & collages tossed from a window.
webhome of k zoë graham
A trip through life with fingers crossed and eternal optimism.
Anna Fonté; the things she writes want you to look at them.
One woman's observations on her way through life
sharing the stories of interconnection
"Nothing that happens to a writer -- however happy, however tragic -- is ever wasted." ~ P.D. James
Financial Services Executive
Words, images & collages tossed from a window.
webhome of k zoë graham
A trip through life with fingers crossed and eternal optimism.
Anna Fonté; the things she writes want you to look at them.
One woman's observations on her way through life
sharing the stories of interconnection
"Nothing that happens to a writer -- however happy, however tragic -- is ever wasted." ~ P.D. James
Financial Services Executive
Erm, what am I doing with my life?
by Peach Berman
Like Mother Teresa, only better.
Nature needs Nurture
Happiness is Baseball
Watercolor stories project - Finished 2021
Never let a manuscript do nothing but eat its head off in a drawer.